Tuesday, 3 September ... 


Now that the Labor Day weekend is about over, I would guess that the #ALSIceBucketChallenge, a phenomenon in its uniqueness as a fundraising campaign in support of what many of us know as "Lou Gehrig's Disease," may also slowly pass to a lesser level of "awareness" into our memories just as will the "holiday weekend" (for lack of a better way to put it).   And that's sad enough, but here's what gets me:


There are fucktards (sorry, Mom) out there who continue to criticize the immense success of this amazing effort that truly came "from the people," a literal "grassroots" campaign.


On August 19th of last year, donations were at 1.9 million.  On that date this year:  $22.9 million.   As of yesterday:  $106 Million Dollars raised!  


And the vast majority of that is DIRECTLY due to the awareness raised through reg'lar ol' people on Facebook, Twitter and other social media venues.  Sure, there were celebs participating and that helped ... so be it.   But I bet if you could make a "pie graph"  John and Jane Doe would make up a bigger piece than Justin Timberlake, etc.  (Not that he's not a great dude, I'm sure he is).


Critics (I'm guessing sad little people with personal issues, small weewees, or who were maybe picked on, bullied or beat up when they were little kids) first started criticizing the phenomenon as 'nothing;' as an excuse for people to post narcissistic (sp?) vids and photos of themselves on these very same social media venues that have BLASTED the annual contributions for this particular disease outta the atmosphere.   The lastest one I've heard criticizes where all the money actually goes.  SMH  And if someone would like to start up a chat about "bullying" and getting picked on when you're little: see "Feedback."


So what about "social media?"   Maybe it's (they're?) not such a bad thing.


​While I have been having fun with Facebook since my wife connected me to it more years ago than I can quickly figure out, I've also been, like many other people, paranoically (sp? is that even a word?) concerned about it.  


I've been concerned that "Facebook sees too much of my stuff," or "Facebook OWNS too much of my stuff," or ALL of my stuff ... or that they're in bed with the CIA, NSA (sorry Admiral) or the FBI and all those other "Big Brother" tentacles we all fear.


But now, for the second time since what has been called "Arab Spring," when all the broohahah blew up in the Middle East,  I have seen something that this "mass connectivity" can actually DO.  Something good.  


So what?  So keep in touch with your family and friends through Facebook and all the people you *don't* know on Twitter.   If it pisses you off, disconnect.  I'm about to (yeah, Facebook pisses me off).  But do not, for one second, think that the bajillion percent increase in both awareness and financial support for this disease is, or ever will be,  a bad thing.


​Maybe, if you're critical of it all, you should be both *careful* what you put out there online *and* accept that people are connecting (see comment re: Arab Spring as well as this whole fundraiser thing) as well as PUT something out there for someone or something else ... stop being so worried about yourself and do something for other people.  Okay.  I'm done.​                                                                                                  - JM(M) -



From the ALS website at ALSA.Org (edited to make sense):

The ALS Association is incredibly grateful for the outpouring of support from people all over the world.  We thank you for participating in the Ice Bucket Challenge and for making donations to support our fight against this disease.


Please visit our Frequently Asked Questions page (at ALSA.Org) for important information about our mission, structure and finances.


We also want to provide you with information about our plans to put the Ice Bucket Challenge donations to work, supporting our short-term and long-term goals. Read more here.


If your question is not addressed in the content provided there, please email us (by clicking the address below) at:


inquiries@alsa-national.org 


and we'll get back to you as quickly as possible.  The ALS Association has demonstrated a strong track record of keeping fundraising and administration costs low and expenses on programs and services to fulfill our mission high.  We are proud to have received the highest ratings from Charity Navigator, Charity Watch, the Better Business Bureau and GuideStar.   We encourage you to review our ratings on these sites and also review our financial documents online at these and also our site.​

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